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This government is making you sick

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So many of us are sick. And there's a reason for it.

Tāmaki Makaurau just recorded its worst week for flu hospitalisations in a decade, with ten-hour waits for hospital beds.  Hospitals are cancelling surgeries so beds can instead be used for emergency patients. Healthline has had to call in reinforcements. The St John Ambulance service received a record 2,562 calls through 111 on Saturday, a 34% increase from a typical day. That's one call made every 20 seconds. One school in Whakatane had 125 of its 431 students away sick, along with 10 staff members.

People are ill with different strains of influenza (mostly A). There's also plenty of Covid 19, RSV and rhinovirus in the mix.

But that's nothing new. Flu and flu-like illnesses always circulate in winter. The question everyone's asking is: why is this year so much worse?

Some people really aren't going to like the answer.

It's the Government's fault. And let me tell you how I know.

I've had a medically fragile child for more than a decade now. "Flu season" has always been an 'all-hands-on-deck' time for our family. We have always monitored strains, and as a family we get vaccinated and take precautions. Since my son was born with a chronic illness and diagnosed with an autoimmune disease, it's been vital - potentially lifesaving - for me to keep up-to-date on what the government is doing around preventable illnesses.

These days, it's more like what the Government isn't doing. Or are actively undoing.

For the last three years I've watched the coalition dismantle our flu defences. Here's how they did it:

They narrowed access to the seasonal influenza vaccination

This year, as we paid $36 for each family member to be vaccinated, I thought: we're going to have a terrible, terrible flu season. Under the previous government, my entire family was funded for a flu vaccination.

Under the Labour government, and as a carer of a disabled child, I was funded; my husband was funded because he's Māori (meaning he's at higher risk for severe illness or complications from influenza); our youngest son is eligible (all children under 12 were but he also qualified due to his disability); and our eldest was funded as he has Type 1 diabetes.

Now, only our eldest son is funded. We paid because we weren't choosing between eating dinner and a flu vaccine. And we paid because we know the vaccine works.

But if you were on the fence about a vaccine, would you pay more than $100 to vaccinate your family? And if you had to choose between the vaccine and one or more meals?

The Seasonal Influenza vaccine is a fantastic vaccine. It doesn’t just reduce the risk and severity of the flu, it also reduces the risk of heart attacks and strokes. It reduces them by ONE THIRD. That’s on par with many of the daily heart medications routinely prescribed to high-risk patients. Last year, flu contraction rates were 69% lower in vaccinated people than in unvaccinated people

Flu is a killer. Around 500-700 people die from influenza each year. Māori and Pacific peoples were around twice as likely to be hospitalised with influenza than non-Māori/non-Pacific people. Last year the government took away free flu vaccines for children under 12, and Māori and Pacific people aged between 55 and 64.

Pregnant people, elderly people, disabled people, and people with mental health issues are also more likely to be hospitalised or die from influenza.

So, in my humble opinion, there's a reason why this government doesn't care about the influenza outbreak. The people who look most like them are least at risk.

If the Government acted now, they could still make a difference. A massive difference. The flu vaccine can still be taken - the national influenza immunisation programme runs from 1 April to 31 December each year, so those who are yet to get their flu vaccine can still do so. You can also get a Covid-19 vaccine at the same time. It ain't over yet.

Despite that, no funding has been allocated for a snap vaccination campaign. There has been no widening of the criteria for free access to the vaccine.

And you know what else the Government has done to make all this so much worse?

They said no to expanding the universal RSV vaccination programme

Each year, 1800 to 2000 children under five are hospitalised in Aotearoa from RSV, with around half of those infants. It's a devastating and serious virus.

International evidence shows RSV immunisation programmes can reduce hospitalisations by up to 90 per cent. When Australia rolled out the vaccine, it halved hospital admissions in the first year. Halved! Australia joined the United Kingdom, the United States, Chile and most of Europe in adding infant RSV immunisation, maternal vaccination, or both, to their national immunisation programmes.

Aotearoa has some of the world's highest rates of serious illness caused by RSV.

A personal note from Josh: my one-year-old daughter caught RSV when we visited my family in Australia this year. It was horrific. She ran frighteningly high fevers for six days straight. Then my son, 5 caught it and was also really sick. We were terrified that we would pass it on to my sister and her newborn child, as RSV is highly contagious and can be deadly or highly damaging to babies under 3 months old. But because she's in Australia, she was vaccinated while pregnant. Which means her tiny daughter had immunity too.

Neither of them got so much as a sniffle.

That's why Government action is so vital - and why this piece of Emily's is so important. We have to ask ourselves: why is a "blogger" (the NZ Herald's term) the only journalist making the explicit link to this deadly mega-flu season and the Government's deliberate choices that have made it so much worse? If you can, please take out a paid subscription or make a donation towards Emily's mahi. It really is incredibly important.

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They cut funding to the FluTracking programme, so it stopped

FluTracking New Zealand used to survey about 40,000 people year-round. They were asked weekly if they had any flu-like symptoms, such as fever, cough or sore throat. They also monitored testing and vaccination status.

More than 142,000 people have participated in our country since May 2018 - I was one of them.

To save just 57,000, the government scrapped this programme leaving a massive data gap. Epidemiologists were aghast.

The government ignored them.

When you're facing redundancy you're not going to risk not being at work

We all know we're living through a cost-of-living crisis. The government is laser-focused on addressing this by pushing the unemployment rate higher and higher (to record levels in fact).

Thousands of jobs have been lost from the public sector alone and right now many public servants know that their bosses are pulling together plans for more job cuts due at the end of this quarter. So, they're going into work sick. Because there is so much pressure, so much work, not enough sick leave, and nobody wants to be seen as 'slacking off' because their jobs are on the line.

People are sending their sick kids to school because of David F-ing Seymour

Parents afraid of David Seymour's bizarre and nonsensical truancy rules are sending their kids to school unwell. Others are unsure of when they're even allowed to keep their kids home without getting in trouble with the Ministry.

Schools are pleading with parents to keep their unwell children at home. Meanwhile, the Ministry of Education has put out official guidance saying children with a mild cough or runny nose can and should attend school.

Yes, those are symptoms of influenza. And Covid-19. And more.

We still don't have clean indoor air standards

The recommendations of the Covid Inquiry were clear. It recommended upgrading ventilation in hospitals and healthcare facilities, and also improving ventilation and filtration in other public places. Like schools.

This government knows these recommendations because they were recommended two years before as well. Aotearoa Covid Action and Long Covid Support has been calling for national indoor clean air standards, with a strong evidence base, for years.

The government continues to ignore them all.

The Government has not called for a return to masking in high-risk settings

If, as is increasingly likely, you find yourself in a pharmacy, doctor's waiting room, or facing the long hours waiting to be seen at the Emergency Department, you are unlikely to see even one mask. Why? They're full of seriously sick people and transmissible illnesses! It's a recipe for disaster. The Government could easily have mandated masking by healthcare workers and patients - one of the most beneficial and inexpensive healthcare interventions - in these settings.

It has not.

Finally, our health system is falling apart

Thanks to relentless underfunding, our health system is cooked. Health NZ data shows some EDs are in "a state of failure". An Auckland Hospital doctor told RNZ that there is near-constant overcrowding in the emergency department and it's leaving staff demoralised and putting patients at risk,  But it's not just there - Hospitals everywhere across the motu are descending into crisis.

Could it be because of the enormous issue of under-hiring nurses (and the fact that National lied about how they're under-hiring nurses)? I mean, I feel like you need nurses to run a hospital well, but what do I know? I'm not an evangelical Christian guinea pig of a man who - in my honest opinion - seems to hate women.

There are too many stories to keep track of, arriving almost daily. A diabetic patient collapsed and died while searching for food in hospital. We have just a third of the number of cardiologists we should.

GPs have said we are at the 'predictable beginning' of health system collapse. Researchers have said the health system needs $1.4 billion just to maintain existing services, and the government's response has been to tell Health bosses to save money.

This government has insisted on impossible cost-cutting measures that have caused massive IT stuff-ups, leaving doctors and nurses having to use pen and paper. Clinics were cancelled as Waikato hospitals were also hit by a major IT outage

For a lot of us, this government has made us feel like we're losing our minds, so I guess it's no surprise that their reign is ruining our physical health, not just our mental health. But really, this is serious stuff.

We're going to lose precious lives, irreplaceable people, to this flu and RSV outbreak.

A grandmother won't make it to her granddaughter's wedding.

A beloved father who is a pillar of his community will never coach his child's footy game again.

Someone's new baby will be buried with their knitted blanket.

Remember: masking is an option. If you are vulnerable, or have vulnerable family members, you can pop a mask on before you head out in public. And for those of us that have to go out when sick - to pick up food or do a school run when no-one else can - please do put on a mask; it can massively reduce the amount of germs you transmit to others.

Let's not normalise deaths from preventable illnesses. Let's not accept this silent war waged against our most vulnerable citizens. We are a wealthy country. We can and should look after each other. And we deserve a government that will make our health system better, instead of actively making it so much worse.

If you love what we do here, please share this post. Please copy and paste the link above and share it wherever you can. If you can't become a paid subscriber, this is the best way to support this mahi. I am endlessly grateful for your support. Arohanui Emily

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What happens when someone’s chromosomes, sex hormones and body don’t align?

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I teach a university course called Hormones and Behaviour. What surprises students is that biological sex is not produced by a single switch. What surprises me is that many students have never been taught this before. It is basic biology, but it helps explain life.

Sex emerges through a sequence of events before birth and continues at puberty. Chromosomes help direct the formation of gonads, the body parts that usually become ovaries or testes. Gonads make hormones. The body then has to respond to those hormones. In most people, these steps flow in the same direction. But in rare cases, they do not.

These cases are known as disorders, more recently differences, of sex development (DSDs). They are not new but they provide a useful way to understand how bodies develop. DSDs can affect hormone production. Some affect the body’s response to hormones. Some affect chromosomes or gonad development. Two people can have a DSD, yet have very different bodies, medical needs and life experiences.

Each condition reveals what can happen when one step in the normal sequence is altered. Here are five ways sex development can take a different path.

Congenital adrenal hyperplasia

This DSD affects around one in 16,000 births.

The adrenal glands, which normally produce small amounts of male hormones, even in females, are hyperactive in this condition.

A baby with two X chromosomes and ovaries can therefore be born with external genitals that look male.

Complete androgen insensitivity syndrome

In contrast, a child with complete androgen insensitivity syndrome (CAIS), can have XY chromosomes and internal testes that make testosterone, but their body cannot respond to that testosterone.

This lack of a response to testosterone keeps the developing fetus in its “default” female state, leading to female external genitals at birth.

Someone with CAIS will develop breasts at puberty. Since their external anatomy is typically female, people with CAIS are usually raised as girls and may only be diagnosed later, often when their periods do not start.

CAIS is estimated to affect one to five in 100,000 live born females.

5-alpha-reductase deficiency

Another condition, called 5-alpha-reductase deficiency, shows how sex development does not finish at birth.

The body needs an enzyme called 5-alpha-reductase to turn testosterone into a stronger version of the hormone before birth. When a genetic mutation inactivates this enzyme, an XY baby may be born with genitals that are read as female and may be raised as a girl. At puberty, however, the normal surge of conventional testosterone masculinises the body.

The condition is rare worldwide and its exact incidence is unknown, partly because conditions affecting sex development have often been surrounded by silence.

In parts of the Dominican Republic, where this condition is known as guevedoces, studies have reported surprisingly high local rates. A rare genetic mutation is more common in these isolated populations, about one in 90 males.

More recently, some of these communities have begun to recognise guevedoces at birth and raise them as boys.

Small wooden mannequins with magnifying glass against pink and blue background.
A person’s sex is more complicated than you might think. s880/Shutterstock

Sex chromosomes disorders

Usually, females receive one X chromosome from their father and one X from their mother, and are therefore XX, while males receive one X chromosome from their mother and the Y chromosome from their father. However, a person with Klinefelter syndrome, affecting one in 500-1,000 male births, has XXY chromosomes, causing smaller testes, scant body hair, lower testosterone and reduced fertility. It is often never diagnosed.

On the other hand, Turner syndrome, or the loss, in females, of one of the two X chromosomes, affects one in 2,500 female births and impairs growth, puberty and fertility. It can affect physical appearance, for instance a wide neck and broad chest and often comes with health conditions such as hearing loss and kidney problems.

Swyer syndrome is rarer: a person has XY chromosomes but with a mutation in the Y chromosome that disrupts the signal that normally drives testes formation. The gonads do not develop into testes, testosterone remains low and the external and internal anatomy is typically female.

These are the clearer examples. Milder sex differences can result from mutations that reduce, rather than completely inactivate, an enzyme or hormone response. For example, non-classic congenital adrenal hyperplasia, where some enzyme activity remains. Their effects may be less obvious, and their incidence is often unknown because many cause subtler changes or are never diagnosed.

What this does and does not tell us

None of this is new. These conditions have been known to scientists for decades. But now genetic testing can identify the mutation behind some cases.

Specialist clinics and patient groups have pushed for clearer information for parents, better psychological support for patients and greater caution around irreversible childhood surgery when it is not medically urgent. Recent patient-centred research shows that clear information, good communication and psychological support are central to good care for people with DSDs. It’s unclear whether increased awareness has improved people’s lives, but the direction is clear: better information, specialist care and long-term support matter.

The lesson is not that sex is meaningless or endlessly fluid. These rare conditions do not provide a simple answer to every argument about sex and gender.

However DSDs do show sex is not a single event. Just like the growth of our body, it is a process. When chromosomes, gonads, hormones and the body’s response to them all follow the usual sequence, the result often looks simple. When one link changes, the body may no longer fit the binary pattern many of us were taught at school.

For the people affected, this is not an abstract puzzle. Some need lifelong hormone treatment. Some face infertility. Some discover their condition only as teenagers or adults. Chromosomes or sex designation at birth may explain part of the biology behinds DSDs. It does not explain what it feels like to grow up, go through puberty, seek fertility treatment or decide who needs to know.

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Why the U.S. sees Quebec’s language laws as a trade barrier

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After Prime Minister Mark Carney walked away from a Canada-U.S. trade deal that Donald Trump had said was close, the protection of the French language and culture emerged as one reason.

Specifically, Quebec Premier Christine Fréchette said Washington wanted concessions on Quebec’s rules for appliances and instruction manuals, as well as its law promoting French-language cultural content.

“A red line,” she quipped Saturday.

“Our culture, our language, is central to our identity, and it is important to exclude that from the negotiating table,” Fréchette said.

Quebec’s recent legislation allows it to regulate how much French-language content digital platforms offer and how prominently it appears. But for U.S. companies, complying with such rules can add to the cost of doing business in the province.

A U.S. company selling a dishwasher in Quebec may need French packaging, controls, warranties and instruction manuals. Even part of its trademark may need to be translated. Streaming platforms face different demands.


There are two Quebec laws in the fray here.

The first is Bill 96, the province’s sweeping overhaul of the Charter of the French Language, which was adopted in 2022.

Bill 96 strengthened French-language requirements for products sold in Quebec, ensuring French appears on packaging and in documents supplied with products, including instructions, warranties and owner’s manuals.

Rules introduced in June 2025 also require generic or descriptive words in some non-French trademarks to be translated.

For U.S. manufacturers, that can mean producing separate packaging, manuals and software for Quebec, a export market for the U.S worth about $21 billion a year, according to Statistics Canada.

The Office of the U.S. Trade Representative, the federal agency responsible for U.S. trade policy, singled out Bill 96 in its annual report on barriers facing U.S. exporters, stating U.S. businesses were concerned about the effect on their trademarks. U.S. officials also raised the law at the World Trade Organization in 2024.

The second law is Bill 109, which extends the dispute from physical products to streaming platforms, televisions and connected devices.

Passed last December, the law requires covered companies to ensure their interfaces can be easily configured in French and allows Quebec to set quotas for French-language content.

Quebec has yet to publish regulations setting the quotas or defining the rules for companies.

Editor’s Picks

In March, the U.S. Trade Representative also listed Bill 109 as a potential trade barrier. Its report said the law could impose separate provincial investment and discoverability requirements on streaming services and device manufacturers, with possible implications for CUSMA.

Netflix, Spotify, Apple and YouTube — together worth about US$9.2 trillion — were among the companies that submitted briefs opposing the law.

The Digital Media Association, whose members include Spotify, Apple Music, Amazon Music and YouTube, argued the rules could interfere with listeners’ choices.

It also pointed to a practical problem regarding how global music databases do not consistently identify songs by language or nationality, making French-language quotas difficult to apply.

A Léger survey commissioned by the association found about two-thirds of Quebecers did not want governments influencing which music is available on streaming services

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UK Summer Internships Now Include Cafe and Bakery Jobs - Bloomberg

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Much less tourists than promised for the World Cup in Canada | Radio-Canada

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Consultez nos nouvelles pour tout savoir de l’actualité internationale, nationale et régionale : vidéos, reportages, dossiers, couverture en direct, et plus.

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Crip-pessimism: The Future of Disability Justice? – BIOPOLITICAL PHILOSOPHY

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The following is the script for my presentation at St. Louis University on 01/31/2025 at 2pm. My slides with alt text can be found here:

“The true philosophy of history thus consists in the insight that, in spite of all these endless changes and their chaos and confusion, we yet always have before us only the same, identical, unchangeable essence, acting in the same way today as it did yesterday and always…The motto of history in general should run: Eadem, sed aliter [The same, but otherwise].” – Schopenhauer

Abstract: Is there a future for disability justice in philosophy? Will society become more accessible? As I unwillingly embark on a new era of rampant privatization, service cuts, and state-sanctioned violence in the U.S., I am not hopeful that things will improve for disabled people. I call this mood “crip-pessimism.” As far as I can tell, crip-pessimism has not been developed as fully as pessimisms in other philosophical subdisciplines, including feminist theory, critical race theory, and queer theory. In this presentation, I examine various pessimistic philosophies and explore whether they can be used to better understand the crip-pessimism that I and many of my disabled friends are experiencing. 

The Elusive Quest for Disability Justice 

In December, I participated in a roundtable discussion at the annual Philosophy, Disability, and Social Changeconference, where I was asked, “what actions can philosophers take to interrupt disability’s exclusion from the profession?” I was tempted to give the usual answers: promote disabled philosophers, critique ableist epistemologies, adopt principles of universal design, and so on. But I no longer feel confident that this advice will make a difference. That is, I am pessimistic about the possibility of an accessible future for academic philosophy. 

At the roundtable, there were three other speakers besides myself, and only one of them works in a philosophy department, even though they all hold PhDs in philosophy and have published extensively in the field, particularly in the philosophy of disability. Nonetheless, Andrea Pitts works in a department of comparative literature and Élaina Gauthier-Mamaril works in a college of medicine and veterinary science. When asked what advice they would give to junior disabled philosophers, both recommended applying for jobs outside of philosophy departments, where their knowledge and expertise might be more appreciated. 

The third speaker, Stephanie Jenkins, did manage to secure a full-time job as a philosopher at a liberal arts college, but after being hired, she had to hire legal representation and file a discrimination complaint against a high-level administrator. She explained that she only had the confidence to sue her university because by then, she was ready to give up on professional philosophy “due to [her] frustrations with the lack of access.” This is not the only disabled philosopher I know who has filed a discrimination complaint, nor the first to consider leaving the profession due to lack of accessibility, and I’m sure it won’t be the last.   

The conference organizer, Shelley Tremain, is one of the most prolific scholars in disabled philosophy of disability, but has no academic job. At the conference, she disclosed that despite her extensive record of scholarship and unpaid professional service, she is now impoverished and on the verge of homelessness. This is a fairly common situation for disabled people, who make up less than 50% of the workforce in Canada and less than 25% of the American workforce according to government data. Disabled people are also underrepresented in the philosophical profession, as I’m sure many of you know. These statistics have barely budged in the last 20 years, making me wonder if real progress is possible. 

Shelley also announced that the conference will no longer receive funding and will cease to exist if no one steps in to cover the relatively small budget for this entirely-online event. Many participants expressed disappointment that the only annual conference for disabled philosophers would be coming to an end. Several also shared that they felt hopeless about the future of philosophy for disabled people, as well as the future of disability justice in general, given the persistence of structural barriers. It doesn’t inspire optimism when disabled philosophers’ best advice is to leave the profession or not go into it in the first place.

In the U.S., this pessimism is compounded by the fact that the new President seems to have no plans to make society more accessible, and may in fact plan to make it less accessible. In a 2024 op-ed in Time Magazine, Trump’s nephew, Fred Trump, disclosed that the President had told him that disabled people “should just die.” When Fred inquired about funding a medical trust for his disabled son, the President responded that he should “just let him die and move down to Florida.” If this is Trump’s intention for disabled Americans, then we can expect no Presidential support for Social Insurance, Medicaid, or any other accessibility services. 

These events have left me with a growing pessimism about the future of disability justice. I am no longer hopeful that society will become less ableist overall. On the contrary, I suspect that it will grow more ableist for the rest of my life, and probably long after that. I also share my colleagues’ suspicion that philosophy departments, especially in the United States, will become increasingly inaccessible. As Republicans continue to strategically underfund higher education and privatize the public sector, the most marginalized subdisciplines will be on the chopping block. This is why I’m reluctant to give advice about how to disrupt ableism in academic philosophy: I don’t want to give people false hope or encourage them to fight a losing battle, if the reality is that many disabled philosophers will end up leaving the profession, filing lengthy and expensive discrimination lawsuits, or falling into poverty after devoting many years of unpaid service or low-paying gig work to a profession in decline. In short, I’m pessimistic about the future for disabled philosophers and disabled Americans in general. 

I call this orientation “crip pessimism.” If you’re unfamiliar with the term, “crip” is a reclaimed shorthand for “cripple,” much like “queer” has been reclaimed and reinterpreted by members of the LGBTQIA+ community. Crip theorists explore how ableist societies oppress and marginalize bodies identified or marked as disabled. They view disability as a social construct or apparatus of power rather than a natural, biological, and apolitical state of individual bodies. Crip theorists also emphasize the intersections between ableism and other forms of oppression, such as homophobia, sexism, racism, and classism. And they typically advocate for social justice, solidarity, and relationships of reciprocity and respect. 

Crip theorists don’t typically write about optimism or pessimism, and the central themes of crip theory – oppression, resistance, solidarity, caregiving – could be seen as compatible with either orientation. When preparing for this presentation, I was unable to find any substantive philosophical account of crip pessimism. Pessimism, however, is a well-developed concept in queer theory, critical race theory, feminist philosophy, and existentialism, where it is associated with inexorable barriers, alienation, anxiety, and death.  

When I googled “crip-pessimism,” the two top results were a dissertation by Michael L. Selk in the field of communications studies, and a book on crip negativity by J. Logan Smilges, an English professor at the University of BC. While neither result is a strictly philosophical account, both resonate with my feelings of pessimism about the future of disability justice. Selk laments that “the disabled are dying and with them dis/abled culture is being eradicated. In the time between formulating this project and its completion already too many disabled souls have been taken from this world, including pivotal disability studies influences for this research.” In a similar spirit, Smilges shares that, “some days my bad crip feelings are felt so cripply that I live in a heap of tears and blankets. Sometimes I feel despair—total, fucking despair.” Although Smilges’ pessimism is ephemeral, it “honors… the depth of [their] bad crip feelings,” which are “no more or less aberrant than the bouts of optimism [they] feel at other times.” Smilges uses the term “crip negativity” to describe the negative emotions that disabled people often feel toward a society that defines them as a negation – as the absence of humanity, knowledge, and other positive qualities. Being defined as negation engenders negative feeling, including sadness, anger, and pessimism. 

Although informative, these texts weren’t exactly what I was looking for, as they’re not philosophical accounts and they don’t offer a focused analysis of crip-pessimism comparable to those in other-disciplines. This inspired me to look more closely at the concept of pessimism in other areas, to better understand my own “crip feelings” about the prospect, or lack thereof, of an accessible future in professional philosophy and the broader culture. Due to time constraints, I can only outline a few pessimistic arguments in each section, but my goal is simply to bring these arguments into productive conversation with crip theory. 

Perhaps I should say in advance that my aim isn’t to convince anyone to become a pessimist. I don’t think that moods or philosophical orientations are under our direct control, so it would be pointless for me to try to convert anyone. Instead, I simply want to develop a framework for understanding what I and some of my friends are feeling as we unwillingly embark on a new era of rampant privatization, service cuts, and state-sanctioned violence. What kind of pessimism is right for this particular historical moment of ableist oppression?  

In what follows, I will examine some pessimistic thoughts in feminist philosophy and African American philosophy, and then compare them to themes in crip theory to see if they can shed light on crip pessimism and contribute to a more intersectional analysis.   

In her paper Perpetual Struggle, Kathryn Norlock argues for pessimism about moral progress. She begins by asking, “What if it doesn’t get better?” and goes on to argue that a better future may not be on the horizon, and there is no guarantee of linear moral progress: 

Against more hopeful and optimistic views that it is not just ideal but possible to put an end to what John Rawls calls “the great evils of human history,” I aver that when it comes to evils caused by human beings, the situation is hopeless. We are better off with the heavy knowledge that evils recur than we are with idealizations of progress, perfection, and completeness; an appropriate ethic for living with such heavy knowledge could include resisting evils, improving the lives of victims, and even enjoying ourselves. (2018: 1)

Norlock contrasts this pessimistic orientation against the optimistic predictions made by philosophers like Martin Luther King Jr., John Stuart Mill, and John Rawls. Dr. King believed that “the arc of the moral universe is long, but it bends toward justice.” Mill said that “in every century, progress is made.” And Rawls argued that “the great evils [of history] will eventually disappear.” Against these optimistic forecasts, Norlock maintains that “there is no reason to believe that the future will be one in which evils cease to be” (6). Furthermore, expecting moral progress can make one vulnerable to “adaptive preferences, that is, preferences for what is within the range of options that are available” (3). Hopefulness, in short, can foster ignorance about the evils of the world and an unwillingness to confront them.

Hannah Arendt similarly believed that hope leads to helplessness and exploitability. In 1934, she described “fear and hope” as “the two arch-nemeses of Jewish politics” (viz., Hill 2024). She argued that hopefulness explains how thousands of Jewish people could volunteer for deportation to concentration camps, optimistic that they were going to resettlement camps that would offer them a better life. Arendt cautioned that totalitarian regimes exploit people’s hopefulness to better control them and lead them to their own destruction.  

Having survived the Nazi regime, Arendt recognized that hoping for an end to evils is unrealistically utopian. Similarly, my grandfather, who lived under Mussolini and endured lifelong PTSD from witnessing the horrors of the fascist regime, believed that fascism would always persist in some form, and we should remain vigilant about the resurgence of fascism under different guises. This advice resonates with non-ideal theory, which acknowledges the reality of structural injustice – a reality that is erased by idealistic moral and political theories predicated on an assumption of linear progress. As Charles Mills put it, ideal theory “abstracts away from social oppression,” thereby both “conceal[ing] its extent” and preventing us from confronting it (2017: 15). As an optimist, Rawls believed that non-ideal social conditions were merely temporary obstacles on the path to a “realistic utopia,” free from injustice. In contrast, Norlock argues that non-ideal conditions are a permanent feature of social reality, making survival a perpetual struggle. Thus, our moral and political theories should be compatible with a realistic expectation of lifelong adversity. This is not a recipe for nihilism, however, since perpetual struggle is compatible with many ordinary goals and values, including survival, solidarity, caregiving, disobedience, friendship, and artistry. 

Norlock’s observations align with a popular belief amongst feminist philosophers that there is a certain logic to the patriarchy, which makes it extremely resilient and resistant to change. Simone de Beauvoir articulated a version of this belief in The Second Sex, where she argued that women are a subordinate class relative to men. As a result, women – as well as sexual minorities like trans and non-binary people – do not enjoy the same freedoms as men, including the freedom to participate equally in public life, contribute equally to public discourse, and be free from violence. Although the patriarchy has changed over the last 70 years, the logic of patriarchy has remains intact, continuing to uphold male privilege, as Kate Manne demonstrates in her book Down Girl: The Logic of Misogyny (2019). Manne suggests that as feminists push against patriarchal barriers, they face greater hostility, which prevents them from achieving the elusive goal of full gender equality. The more feminists push against the patriarchy, the harder the logic of misogyny pushes back. While feminists have made gains since the 1950s, the patriarchy continues to assert itself in new and more insidious ways. 

Beauvoir herself often wrote optimistically about the future of feminism, but theory and practice do not always align. Beauvoir ended up quitting philosophy because of her insecurities about her philosophical abilities, which were triggered by Sartre’s adversarial comments. She wrote in her memoirs: “Day after day, and all day long I measured myself against Sartre, and in our discussions I was simply not in his class…. [Eventually, I came to realize that] many of my opinions were based only on prejudice, bad faith or thoughtlessness, that my reasoning was shaky and my ideas confused. ‘I’m no longer sure what I think, or even if I think at all.’” After quitting philosophy, Beauvoir remained romantically linked to Sartre until his death, when she was surprised to learn that he had cut her out of his will and bequeathed everything to his latest girlfriend. Beauvoir’s hopefulness about the future of feminism didn’t protect her from ordinary misogynist antagonisms, such as being pressured to quit your job by your spouse or being denied reciprocal caregiving. 

Lauren Berlant (2011) uses the term “cruel optimism” to describe the hope or desire for an unrealistic future, which inevitably leads to disappointment, frustration, or delusion. She applies this term to the attitude held by many Americans in the 1980s, who hoped for the upward mobility, job security, and social equality promised them by post-war politicians. Persistent belief in the American dream, says Berlant, made Americans susceptible to excessive workaholism, empty relationships, and consumerist lifestyles that failed to deliver a meaningful life. Rather than hoping for a better future that may never come, Berlant recommends embracing small acts of care, connection, and joy that can be realized in neoliberal societies that deny people basic security, stability, or a guaranteed quality of life. 

Norlock is careful to note that pessimism is not incompatible with feminist values like care, friendship, and solidarity. Unlike classical liberal theorists who aimed to change the world, feminists tend to have more modest goals that can be realized within patriarchal societies. 

The value of non-world-changing goals is demonstrated by Norlock’s treatment of complaint in another paper (2017). Specifically, Norlock argues that complaining about one’s plight is valuable even when politically ineffective. This challenges the dim view of complaint held by Aristotle and Kant, who described complaining as useless, emasculating, undignified. Aristotle wrote that “females… and effeminate men enjoy having people to wail with them… But in everything we must clearly imitate the better person” – that is, a man. Kant similarly held that “no true man will importune a friend with his troubles.” Both philosophers believed that complaining is irrational and self-indulgent because it accomplishes nothing. Political protest, on the other hand, changes society for the better, and is therefore fitting for rational and “manly” people. This dismissive view of complaint is, of course, sexist, but it is also overly optimistic about the future, which is not under our direct control. The dismissive view fails to acknowledge that some people – specifically, deeply oppressed people – are not even in a position to change their own circumstances, let alone the entire world. Nonetheless, their complaints are valid. Complaining can solidify social bonds and communicate knowledge to others, even when it doesn’t change the grand scheme of things. This is why complaining about a hopeless situation can be valuable. In fact, complaint is most valuable in the most hopeless situations because it generates the kind of solidarity and friendship that makes oppression more bearable. The value of complaining doesn’t depend on the possibility of political change, and is therefore compatible with pessimism.  

Myesha Cherry (2020) similarly argues for the importance of care in conditions of inexorable oppression. Consistent with non-ideal theory, Cherry notes that the world is full of evils. However, not everyone chooses to acknowledge those evils; some prefer to be “blissfully ignorant.” Others choose to be aware of systemic evils, and these people are colloquially called “woke.” Cherry notes that “being woke can impede wellbeing” because it can cause existential, mental, and emotional anguish (2). The pain of wokeness can come from knowing that society defines you as a “problem” or negation; reckoning with painful memories of a lifetime of oppression; and acknowledging that people will continuously disappoint you by refusing to change. Despite the pains of wokeness, we should not recede into bad faith. Rather, the solution to woke anguish is “solidarity care” or collective concern and mutual support among people who share a common struggle – one that may never end. Cherry emphasizes that we should care for people not just “as a means to accomplish a grand objective,” but simply because they deserve care, especially in the worst and most irremediable situations of suffering (5). This is consistent with the general feminist understanding of care as a relational value rather than a political expedient. Care, as such, is valuable even, and especially, when the cause of a person’s suffering is irremediable.   

Although Cherry isn’t particularly pessimistic, she does agree with Norlock that feminist goals, like care and solidarity, don’t need to be politically expedient to be valuable. Rather, these goals should be compatible with pessimism about moral progress, as this 

makes them accessible to oppressed people who may have no control over their situation. 

Cherry notes that “care ethics is in some ways the opposite of the liberal tradition,” which instrumentalizes emotions and relationships as mere means to a political end, prioritizing grand objectives over more accessible goals like caring and building relationships (5). In contrast, feminists care ethicists tend to value pragmatic goals such as finding joy in dark places, building friendships in hopeless situations, and disobeying patriarchal rules for the sake of defiance. These goals are compatible with the possibility that things won’t get better.  

B. Afro-pessimism 

When one thinks of pessimism, one of the first philosophies to come to mind is probably Afro-pessimism. Afro-pessimists such as Frank B. Wilderson II (2015) and Orlando Patterson (1982) believe that Black people are defined in modern liberal societies as the negation or absence of humanity and valuable human characteristics. The ontological positioning of Black people outside the category of the human ensures that anti-Black racism will persist, regardless of social or legal reforms. Afro-pessimists are therefore skeptical of liberal frameworks for addressing racism, such as anti-discrimination laws or diversity initiatives, which address surface-level manifestations of racism while leaving its foundational structures intact. Afro-pessimists describe the condition of the Black subject as one of “social death,” characterized by perpetual violence, dispossession, and social exclusion.   

Afro-pessimism may seem to be incompatible with the gains of the civil rights movement, which have inspired hope for perpetual progress, but Derick Bell contends that the perception of linear moral progress is little more than an optimistic illusion. In And We Are Not Saved: The Elusive Quest for Racial Justice (1987), Bell argues that “American civil rights doctrines and laws were little more than symbolic gestures used to maintain societal stability and diffuse black radicalism” (Curry 2017). As my friend Tommy Curry describes Bell’s thesis,American policymakers decided that “Blacks in the United States would be allowed to progress as long as their agenda did not conflict with the interests of a broad group of whites. In short, Black rights would remain secure or be rewarded as long as those rights aligned with the interests of the dominant white group.” As such, civil rights laws were enacted only if they aligned with and protected white privilege. Consequently, the civil rights movement allowed anti-Black racism to persist, albeit in subtler and more insidious forms. Bell’s analysis affirms the Afro-pessimist thesis that the struggle against racism is perpetual.   

Nonetheless, Afro-pessimism is not incompatible with post-colonial values such as survival, solidarity, disobedience, and joy. In The Politics of Black Joy, Lindsay Stewart writes that, “although the South burgeons through and through with racism, our oppression is not so totalizing that it chokes out every tender shoot of Black joy” (2024: 2). Black joy, as Stewart describes it, is not a form of protest or resistance – which would presuppose the hope of a better future – but is instead self-referential, aimed at cultivating happiness, art, and beauty independent of the white gaze. Stewart characterizes Black joy as form of refusal rather than resistance because it doesn’t need to react to or defined itself against white supremacy; instead, it exists on its own terms, as sui generis. Thus, Black joy is compatible with the rising tide of white supremacy; it exists independently of the white gaze’s perception of Blackness.

C. Crip-pessimism 

The pessimistic orientations discussed above resonate with themes in crip theory and can be used to further develop a notion of crip-pessimism that could be useful in the modern era.   

First, a common theme in pessimistic philosophies is negation as a logical signifier of oppression. Oppressed people are defined in opposition to humanity as the absence of valuable human properties. Consistent with this, crip theorists note that modern neoliberal societies define disability in opposition to humanity as a fundamental lack, deficit, or impairment. Shelley Tremain, for instance, writes that the dominant definition of disability is as “a natural human disadvantage” and “an inherent human flaw” (2017: viii). This negative conceptualization places disabled people in a state of social death or perpetual dispossession, exclusion, and violence. It validates the claim that “disabled people should just die,” as well as policies designed to eliminate disability and, by extension, disabled people. 

Because the logic of ableism is so deeply ingrained, liberal frameworks for addressing it are unlikely to succeed. In Empire of Normality: Capitalism and Neurodivergence, Robert Chapman argues that the “liberal, rights-based framework” popularized by the civil rights movement cannot eliminate structural ableism because it “focuses on incremental reforms within the system,” leaving intact the “deeper societal power relations, structures, and norms” that maintain able-bodied privilege (2023: 7-9). While civil rights legislation did “help some neurodivergent people, it was mainly those who were already relatively privileged in other ways – white, middle­class, and so on – while leaving multiply marginalised neurodivergents stuck in a variety of carceral systems, homeless, or in other unbearable situations” (9). Seemingly, neurodivergent people have been allowed to progress only as long as their agenda does not conflict with the interests of the neurotypical majority. As civil rights activists demanded more rights for disabled people, the logic of capitalism responded with more insidious and resilient forms of ableism, which have been harder to dislodge. Chapman adds that late-stage capitalism has generated a “mass disabling event,” with levels of depression and anxiety on the rise (107). Rather than abating, ableism has, in some ways, intensified as capitalism has produced less security and more intense disasters.   

Should we remain hopeful that liberal reformism can fulfil its promise of radical change? Believing in the liberal utopia promised by post-war politicians could be a form of cruel optimism that will only bring disappointment, despair, or delusion. But this doesn’t mean that all is lost. We can still invest in the relational and self-referential goals of solidarity, care, commiseration, disobedience, and joy promoted by feminists, critical race theorists, and existentialists like Camus and Nietzsche. These goals don’t depend on the possibility of moral progress because they are already available to us, no matter what our circumstances.  

For me, this is an appealing proposition because it resonates with my experiences. When I attend conferences by and for disabled people, I get to see my friends, enjoy myself, and share stories about my experiences, including my pessimism about the future of disability justice. We complain about our struggles, even though none of us knows how to solve them, much less save the world. But saving the world isn’t the point of going to the conference. It’s to create a temporary oasis of crip joy, solidarity, and knowledge in a vast desert of ableism.  

Norlock points to Aldo Leopold as a real-life exemplar of the ethic of perpetual struggle. Leopold, an American environmentalist, “saw environmental deterioration as inexorable, but he greatly enjoyed taking a canoe on singing waters, and celebrated the pleasures of nature, both aesthetic and affective” (11). Leopold predicted that environmental degradation would continue to accelerate, and he was right. Last week, Florida was covered in snow while California was on fire, and these disasters will only intensify. But, as Leopold said, “that the situation is hopeless should not prevent us from doing our best” (ibid). Doing our best is always an option, even if our house is on fire. There are some things that oligarchs can’t take from us.

This is a good lesson for those of us who are pessimistic about the future of disability justice. Is there an accessible future for professional philosophy? Even if the situation is hopeless, we can do our best to survive ableist austerity measures, show solidarity to people facing ableist discrimination, care for people affected by ableist policies, and show up for disabled people in other ways, even and especially if America’s political circumstances don’t improve.    

Thank you.

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